We met with Dr. Marcoux this am after mom's radiation appt. to check in. He also wanted to discuss health directives while mom is still able to make a decision. And basically she does not want to stay alive on any kind of machines and doesn't want to be resuscitated. I didn't blink an eye when I heard that. Am I suddenly immune to the thought of my mom dying? Or have I programmed myself to ignore any kind of emotional feelings in order to stay calm? I cannot afford to be emotional when I'm in these situations especially in front of my parents. They are relying on me to help them through this.
It also didn't help because the interpreter was fucking up the interpretation and getting the diagnosis backwards. So I had to correct him! After that, he kept talking over Dr. Marcoux because he didn't remember all that was said. It was annoying and yet scary. How can you not worry that he may be telling folks the wrong information especially in these circumstances!
We then started to discuss next steps after radiation is completed on the 13th. I thought we should schedule a CT scan to see how rapidly the tumors in her lungs, lymph nodes and liver are growing. Especially the lung area where she'd already had radiation.
Dr. Marcoux said 1 out of 10 people at this stage will respond to chemo. He said alot of folks stop treatment because they can no longer withstand the effects from the meds, and chemo/radiation. Although my mom is doing very well considering what she's been through. I asked about the Immunogen clinical trials that Dana Farber is conducting and whether my mom is eligible. One is no longer recruiting and the other is using the same chemo drugs that my mom has used so that wouldn't work. There is another clinical trial that they've had some success with some patients. And if she was interested in, he would sign her up. I said maybe she can make a decision after the CT scan. All agreed it would be a good idea. CT scan is scheduled on the 27th.
It also didn't help because the interpreter was fucking up the interpretation and getting the diagnosis backwards. So I had to correct him! After that, he kept talking over Dr. Marcoux because he didn't remember all that was said. It was annoying and yet scary. How can you not worry that he may be telling folks the wrong information especially in these circumstances!
We then started to discuss next steps after radiation is completed on the 13th. I thought we should schedule a CT scan to see how rapidly the tumors in her lungs, lymph nodes and liver are growing. Especially the lung area where she'd already had radiation.
Dr. Marcoux said 1 out of 10 people at this stage will respond to chemo. He said alot of folks stop treatment because they can no longer withstand the effects from the meds, and chemo/radiation. Although my mom is doing very well considering what she's been through. I asked about the Immunogen clinical trials that Dana Farber is conducting and whether my mom is eligible. One is no longer recruiting and the other is using the same chemo drugs that my mom has used so that wouldn't work. There is another clinical trial that they've had some success with some patients. And if she was interested in, he would sign her up. I said maybe she can make a decision after the CT scan. All agreed it would be a good idea. CT scan is scheduled on the 27th.
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